The Great Mississippi River Race for
Rett Syndrome, May 2001


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The Great Mississippi River Race for Rett Syndrome, May 2001

We have finished fundraising for the Great Mississippi River Race for Rett Syndrome May 2001 - and almost $40,000 for Rett syndrome research was raised and earmarked specifically in response to the Great Mississippi River Race for Rett Syndrome! Additional funds have been received by charities and research groups as a result of the race, and we are grateful for everyone's generosity. Special thanks to all Bristol-Myers Squibb, all Teams and all Sponsors/Donors for all their generous support.

Rett syndrome research funding has been historically funded from the National Institutes of Health, private research work and grants, donations from Rett syndrome families and friends, and many charities that fund research related to the cause of and cure for Rett syndrome.

In the fall 1999, an unusual X-linked genetic mutation (MECP2) was discovered and accounts for most cases of Rett syndrome. Time is of the essence to support research now so that those living with Rett syndrome today may lead a substantially better life today!

The Rett Syndrome Research Foundation (RSRF) is the only Rett syndrome 501(c)3 charity that strictly funds biomedical Rett Syndrome research. If you would like to continue to donate to Rett syndrome research at this very crucial time, please consider supporting those with Rett syndrome by donating directly to the Rett Syndrome Research Foundation (RSRF) or your favorite Rett syndrome group, charity or research lab. Remember to mark your donation "for Rett syndrome research only" if you want to make sure your donations are used for research.

Thank You!

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Catch Another Great! Adventure at The Mississippi River Challenge for Rett Syndrome and Leukodystrohpy, May 2003!