The Eid family, at the headwaters of the Mississippi River. L to R: Clark, Noah, Mary (standing) and Amanda. Amanda Eid has Rett syndrome.Photo by Tony Swenson (team Double Helix)

Bow of the Double Helix, the flagship race craft for the Great Mississippi River Race for Rett Syndrome, May 2001. The Double Helix was built by Clark Eid and is encircled by a floral representation of a DNA code that spells Amanda's Dreamkeeper. The craft was signed by Dr. Watson and Dr. Crick, and contains wood and boat fragments from the Amistad, Alcyone and Calypso.

Dear Friends:

It wasn't long ago that our lives seemed somewhat normal, even for a family with a child suffering from Rett syndrome. That was a time when there was more of a distinction between what was "impossible" and what was merely "difficult".

Now, our lives and views have been forever changed for the better, because of you. The Great Mississippi River Race for Rett Syndrome, May 2001, would have been impossible without your kind help. This event has drawn out the best in everyone and we are truly thankful. You are the "Dream Keepers" for our children's future.

We also want to thank all those who made the difficult choice to become involved with the often bittersweet world of Rett syndrome. You've demonstrated remarkable courage in becoming part of our lives. It's impossible to over-estimate the positive effects of your actions.

Last, but not least, we call upon the research community to take notice and pride in this event. We recognize that your research holds the keys to unlock our children's bonds. We need your help, and we'll go the extra 2,348 miles to help you do what was once thought impossible ...... to find a cure!

With Kindest Regards,
Clark Eid and Mary Potter