The Great Mississippi River Race for Rett Syndrome, May 2001
We are Going the Extra Mile.....
The Extra 2,348 Miles to Find a Cure!
Website http://www.dreamkeeper.org
Press Release by Clark Eid and Mary Potter

"Far better to dare mighty things, to win glorious triumphs, even though checkered by failure, than to rank with those poor spirits who neither enjoy much nor suffer much, because they live in the grey twilight that knows neither victory nor defeat." Theodore Roosevelt

Race Course

Mississippi River

The Race Course ...... Over 2300 miles of grueling conditions including floating unreadable bogs, tornadoes, dangerous storms, barges, tankers, wing dams and more.... all to raise awareness and funds for research for Rett syndrome while setting World Records!


The Minnesota Rett Angels sponsored dinner May 4, for all families and teams. Thank you to all the kind families who helped out!


Team Kruger, in MN, passing a home in flooded waters


Team Double Helix, in MN


Team Alaska, in the meandering Mississippi River in Minnesota, just south of the Headwaters.


Team Rebels With A Cause near the start


Team Amazons of the Mississippiat the start

The Race

On May 5, 2001, five daring, mighty teams of determined paddlers gathered at Itasca State Park, Minnesota and began the world's longest canoe/kayak marathon race. All teams donated a tremendous amount of time, money, hard work and sweat to participate in this race! Physical and mental endurance were taken to the extreme while attempting to paddle 2,348 miles nonstop to the Gulf of Mexico to set new World Records.

More importantly, participating teams and families from across the world raised awareness of Rett syndrome in the general and scientific communities while raising funds to find a cure. A marathon of research, echoing the demands of this epic journey, is our best hope for our children's future.

Teams Survive World's Longest, Toughest Race

In true "Survivor" form, two teams of undaunted paddlers finished the longest non-stop canoe/kayak race in history when they arrived at where the Mississippi River enters the Gulf of Mexico, ending an epic journey of 2,348 miles that encountered everything from exhaustion to some of the worst flooding on record. The race started on May 5th, 2001 at 6:00 AM from the Douglas Lodge area on Lake Itasca and ends af Mile 0 South of Venice, Louisiana!

Team Kruger, led by the renowned Verlen Kruger and Bob Bradford, placed first in their specialized canoe at 24 days, 17 hours, 51 minutes. Team Double Helix, featuring the event's unique flagship kayak called the Double Helix, placed second at 26 days, 6 hours, 40 minutes. Team Alaska, showing true perserverance and dedication, replaced a kayak after it was lost in a harrowing rapids in Minnesota and stayed in the race! Team Alaska remained on the river until May 31 and pulled out at mile marker 707. Teams Amazons of the Mississippi and Team Rebels with a Cause made a gallant effort but had to withdraw from the race after the first week.

Special US Coast Guard permission was granted to travel on otherwise "closed" sections of the river. Unfortunately, negotiations for this cost the racers at least two days. The US Corp of Engineers also permitted several Locks and Dams to be safely navigated by going over their spill-ways. Foul weather, combined with the unusually high flow rates, at times generated extraordinary paddling conditions. Although all paddlers experienced some physical trauma, only two required temporary hospitalization.

The race was sanctioned by the United States Canoe Association and American Canoe Association. Teams were obligated to follow extensive rules, safety programs, to donate to rett syndrome research charities to participate in this race.

The Double Helix- The Race Flagship

The Double Helix is an extraordinary custom kayak that served as the flagship for The Great Mississippi River Race for Rett Syndrome, May 2001, primarily built by Clark Eid, chairman and founder of the Great Mississippi River Race for Rett Syndrome, May 2001.

The Double Helix was paddled by Clark Eid and Kurt Zimmermann of Team Double Helix during the extreme charity event The Great Mississippi River Race for Rett Syndrome, May 2001 during one of the worst floods on record. The Greatest Mississippi River Race for Rett Syndrome holds a world record for the longest non-stop canoe and kayak race.

This Double Helix was built in honor of Clark's daughter Amanda Eid, who has Rett Syndrome. The Double Helix was built with almost 100 different types of wood. Clark designed the two rose vines that can be seen wrapping completely around this unusual craft. This mural was created by using over 2,000 pieces of 63 different wood veneers in a technique known as marquetry. The rose vine was designed to mirror a segment of double-stranded DNA that codes for a peptide that spells: A-M-A-N-D-A-S-D-R-E-A-M-K-E-E-P-E-R.

Where is the Double Helix Today?

The Double Helix is in the process of being publicly placed at the world-class Morial Convention Center in New Orleans so that we can continue to raise awareness of Rett Syndrome to the general public.

 

About This Special Charity Event

The Great Mississippi River Race for Rett Syndrome, May 2001, is the brainchild of Clark Eid. Clark Eid and his wife Mary Potter planned this extreme charity event to raise awareness and research money for Rett syndrome, a rare and devastating neurological disease that has afflicted their daughter, Amanda.

Rett syndrome is a rare and devastating neurological disease that affects 1 in 10,000, primarily female children, and has no cure. Over 99% of all families affected by Rett syndrome do not have any family history of this progressive and deadly disease. There is no treatment for Rett syndrome.

Through this charity event, participating teams and families from across the world raised awareness of Rett syndrome in the general and scientific communities while raising funds to find a cure. A marathon of research, echoing the demands of this epic journey, is our best hope for our children's future.

"We wanted to do a special charity event that would be remembered for all time, so that we could help those with Rett Syndrome for all time", Potter said.

If you would like to help, please consider donating to the Rett Syndrome Research Foundation or to your favorite Rett syndrome research fund and indicate your donation is for Rett Syndrome Research. Donations to 501(c)3 charities are often tax deductible. Please check with your tax advisor or the charity for more information.


L to R, Clark Eid, Noah Eid, Amanda Eid and Mary Potter at the headwaters of the Missisippi River.

Legal Copyright: The Great Mississippi River Race For Rett Syndrome, 2001. All Rights Reserved
Catch Another World Record Setting Adventure at The Mississippi River Challenge for Rett Syndrome and Leukodystrohpy, May 2003! http://www.mississippichallenge.org