Special
Thanks
Great
Mississippi River Race for Rett Syndrome, May
5-31, 2001
There
are many kind folks who have helped make the
Great Mississippi River Race for Rett Syndrome,
May 2001 possible who were not listed on the
Sponsors pages. We thank them, verbally, in
writing, and most importantly, in our hearts.
Your
kindess is no longer unsung.
Mary
Potter & Clark Eid
Rett
Syndrome Community
We
would like to thank all of those who have Rett
syndrome who continue to wait - and not always
Silently! - for the world's continued support
and help in improving the quality of their lives
in all ways possible. Without your presence
on this planet, this race would have never become
a reality! We hope you won't have to wait much
longer.......
We
would like to extend our gratitude and thanks
to parents, family members, and friends of the
Rett syndrome community who have worked hard
to help those with Rett syndrome in the past,
today, and in the future. We are grateful for
your work and assistance.
Special
thanks to Dr.
Huda Zoghbi and Dr. Ruthie Amir and all
researchers and MDs who have looked for a genetic
cause for Rett syndrome for countless hours
over the years! Your dedication and drive have
furthered our children's chances of living significantly
improved lives.
Special
thanks to all MECP2 researchers who have worked
on MECP2 for over a decade prior to finding
that a genetic mutation in the MECP2 area can
cause Rett syndrome! Your prior work has expedited
the research for Rett syndrome one hundred fold!
Special
thanks to the National Institues of Health (NIH)
for the millions of dollars they have paid out
over the years to support Rett syndrome and
MECP2 research over the years through grants
for researchers all over the world. Please keep
helping our girls by supporting research!
And
special thanks to all the doctors, researchers,
therapists, educators and medical community
support all our children have received over
the years!
By
working together, we can continue to improve
the lives of those living with Rett syndrome
even further and some day, find a cure!
Race
Assistance
We
would like to thank allEvent
and Team sponsors andTeams
for their
active participation in this Event. You have
helped to make our dream a reality!
Many
additional folks assisted with the race in many
capacities....these include individuals associated
with the Federal
Fish and Wildlife Service, the Minnesota
State Park System, and the United
States Canoe Association and the American
Canoe Association. They have our sincere
appreciation.
Thanks
to the Rett Syndrome
Research Foundation for graciously accepting
responsibility for accounting and covering all
associated costs of donations and related bookeeping
and mailings for this race and for thanking
us for the opportunity.
Special
thanks all Planning
Committee Members.
Your donations of time, energy and devotion
made this charity event possible.
Special
thanks to the Minnesota Rett Angels for organizing
a dinner for all racers and team members and
local Rett syndrome families the night before
the race!
Special
thanks to the Hard Rock cafe in New Orleans
for helping with a get together dinner at the
end of the race!
Media
Special
thanks to all the media, rett families, team
members, and supporters who helped increase
awareness of this charity event and the plight
of those who have Rett Syndrome.
Web
Site